Something Isn't Correct

Coordination

Some things are meant to go well with others:

Colors of clothes, the tastes of food and wine,

Matching outfits for sisters and brothers.

All are set to be a lovely design.

Raising a glass to my lips as I dine,

Or bringing food to my mouth as I eat,

Or simply tying a knot in some twine

Becomes, to me, an impossible feat.

So many things have been rendered obsolete

With the loss of my coordination,

But I refuse to quit and face defeat.

I leave you with one last contemplation:

From chopsticks to pens, I have lost so much,

But I will press on, even with a crutch.

-Josh Evitt 2019-

Fatigue/Lassitude

Lassitude

There are times when my energy is drained.

MS fatigue can strike out of nowhere,

Making me feel as if I have been chained

To this disease, injured beyond repair.

Fatigue raises its head, bringing despair

That I never will be free from this MesS.

At times I can barely steer my wheelchair,

Making clear just how far it can progress.

Fatigue also causes mental distress.

The worst part of fatigue impacts my brain,

Hindering the steps of my thought process,

Causing the ones I love to see my pain.

Due to fatigue, and the havoc it brought,

This fight cannot be won, but will be fought.

That Was Weak

Weakness And This MesS

Symptoms will continue their progression.

Basic tasks have become complicated,

As this weakness furthers my regression

Leaving me even more irritated.

Loss of strength often leaves me deflated,

With just barely enough ability

For minor tasks, leaving me frustrated

At my state of constant futility.

As weakness lessens my mobility,

I will refuse to sink into despair.

I will accept this disability,

And take my stance in a wheelchair.

I will not stop moving will not submit.

MS will lose this fight I will not quit.

-Josh Evitt 2019-

✱Note: Yes, I know this one stinks. I figured that it would fit the subject.✱

Do You Feel Me?

Numbness

A symptom of multiple sclerosis:

A loss of feeling throughout my body.

I have been living with this neurosis

And a weakened sense of what touches me.

On most days I will find myself nearly

Dropping anything that I try to hold.

I miss tactile feeling so dearly.

But 'meds' and OT help keep it controlled.

It won’t relent, even as I grow old

Scars, bruises also bring testimony

To how powerfully numbness can hold

Me in its icy grip of larceny.

Despite this theft, I will still live my life.

I will be there for my children and wife.