Tuesday, December 31, 2019

Looking Back

The Last Word

     I began this year with one goal: Write one poem a week for the entire year, using predetermined topics and genres, about different aspects of my life with this MesS, also called Multiple Sclerosis. I am not sure how seriously I can take these textbook examples of doggerel, but without further hesitation, here is the last.

So, now a year has come and gone.
This collection is almost done.
Poems for a year,
Giving me a clear
And sincere
Denouement.
-Josh Evitt, 2019-

Tuesday, December 24, 2019

To My Dear And Loving Wife

My Wife

She stayed with me through so much strife.
She helps me see a better life,
And lets my strength grow!
So, let the world know,
my love show,
For my wife!

We Are Family!

Brothers and Sisters!!

They did not leave when it arrived,
And with their love and help, I thrived
It’s not been easy,
At times uneasy.
Thankfully,
I survived.

Thursday, December 12, 2019

With Friends Like These . .


Amigos, Buddies, Pals, Friends

While some of my friends from the past,
Through this progression, might not last,
Others will stay near,
Unshaken by fear.
And sincere
Holding fast.

Tuesday, December 03, 2019

New Month, New Poems

Clogyrnach

     So, for the final month, I have chosen the clogyrnach, a Welsh style adequately fits 'winding down'. So, here is the first of the last.
It has many different faces,
Arriving from different places:
Mind, body, or heart.
With a random start,
Like a dart,
Pain races.

Tuesday, November 26, 2019

Just Gimme Two (more) Steps

Walking

My steps are now forsaken.
So that hope will soon appear,
Resolve remains unshaken.
My want to walk is sincere.
(Josh Evitt, 2019)

Monday, November 18, 2019

I wish there was a Chill one.

Pills

Symptoms might need prescriptions,
Or meds that are bought retail
All with unique descriptions,
Symptoms I hope to curtail.
(Josh Evitt, 2019)

Tuesday, November 12, 2019

The Only Spaghetti I Don't Like

😱Atlanta Traffic😱

A source of much frustration
And it will never relent.
This is the trip’s damnation:
Rush hour’s trail of pure torment.
(Josh Evitt, 2019)

Thursday, November 07, 2019

A Fresh Start

November

Ae Freislighe is the poetic form that I have chosen for November. It's going to be interesting. So, without further delay, here is my first attempt.

Shepherd Center
MS is my affliction
This place gives me some relief
To help with its infliction:
Many scars, beyond belief!

-Josh Evitt, 2019-

Tuesday, October 29, 2019

Lookout Below!

Falling

A trip to the floor
Now takes even more
Time for me to rise,
And it’s no surprise.
Because of this MesS,
With all of its stress,
I just want to quit
My struggle with it.
Instead of defeat,
The struggles I face
Will be put in their place!
-Josh Evitt, 2019-

Wednesday, October 23, 2019

Playing Catch Up

Lazy

     So, I slacked off a bit. Here's the last few weeks all in one.
Infusions
Putting meds in my veins,
Soothing some pains
Sitting still all day
As time flies away
The new med is here
And its process is clear
Six hours to wait
There is no debate

Frustrations
Can’t walk anymore
Afraid of the floor
My right hand can't write
My left hand is a fight
My legs often ‘dance’
I rarely wear long pants
For, when summer begins,
I retreat inside, and MS wins

Predictions
It will progress,
And bring distress,
But I will fight
All through this night

Tuesday, October 01, 2019

New Month New Style

For October, I've chosen skeltonics. They're a lot of fun.
Injections!
The needle is set
Conditions are met
No time to fret
My training is done
A new med’s begun
These shots aren’t much fun.
-Josh Evitt-

Saturday, September 28, 2019

Not Going ANYWHERE

ACROSTICS are done!

     This is the last Acrostic pseudo-poem, thank God. I'm not going to try this one in a long time.

Part of my life,
Each day filled with strife,
Relapses and more,
Medicines galore,
And now a wheelchair,
Needed everywhere,
Enables me to
Nimbly move through
This life with MS.
-Josh Evitt, 2019-

Saturday, September 14, 2019

An Immoveable Object

An Irresistible Force

Debilitating relapses
Ignite my desire to
Stay hidden from a world which
Always reminds me of what I’ve lost.
But I refuse to keep myself cloistered,
Languidly wasting away in my wheelchair.
Each day greets me with greater challenges, yet
Despite my failures, I will keep living!

Tuesday, September 10, 2019

A Helping Hand

Admit It

Help is now needed for so many simple tasks,
And admitting weakness is never easy.
Nevertheless, my pride has been broken.
Deciding to accept this label, I did not fully understand
Its ‘other’ names and how with one tag on my mirror,
Crippled, weak, suffering, pitiful, among others, would cling.
As each day progresses, I am faced with
Problems that snowball into more disastrous
Problems, attempting to keep me in the house.
Each day brings a new set of challenges
Daring me not to live my life.
-Josh Evitt, 2019-

Tuesday, September 03, 2019

Clean Month! Move Down!

September's Here

With the arrival of a new moth also comes a new genre of poem. Each poem this month will have a very specific similarity. Can you find it?

Delving into a few bizarre events,
I sought out a doctor who could make sense
And give a name to this problem I fought,
Giving me hope that a cure could be sought.
Neurologists thought a nerve had been pinched,
Off to a surgeon, who at numbness flinched,
Suspecting a thing far more hideous.
Its name is now truly insidious.
Such is life with, "Multiple Sclerosis."
-Josh Evitt, 2019-

Tuesday, August 06, 2019

New Month, New Style

Blank Verse

Why would starting August with blank verse will be tough?
  1. Lack of rhyme requires much more emphasis on meter. This not free verse.
  2. It will rely heavily on imagery that is used properly.
  3. It can easily turn into simple narrative jargon.
*NOTE* For the rest of the month I decided just to make one long poem. Here's the result.* 

MS transformed so much of what I am,

Regressing my life like an inverted
Caterpillar, seeking to hide once more
Within a safe cocoon, sheltered from life
With this rancid disease seeking solace,
Dodging interaction with all others,
Happy to waste away in solitude.
Things that once were easy have now become
Difficult at best, impossible at
Worst. Many things that I loved to do are
Gone, never to return, while others will
Never appear. Despite MS there have
Also been some benefits from the MesS.
From the Shepherd Center, to my facebook
Friends who struggle with this vile disease: MS.
I have received help from many people,
Joining me as I fight MS’ symptoms,
And I have so much to be thankful for:
From my dear family to all my friends.
They have stayed with me through the highs and lows.
Do I want my life to improve? Of course!
But there are things that will only degrade.
A pebble rolls down the side of a hill
With others it becomes an avalanche.
As symptoms rise and fall, I must remain
Determined to live my life with MS.
Changes are made to how I do most things,
From dressing to eating, bathing and more
I have learned that I can’t ignore MS.
Living my life with this disease I choose
Acceptance of this life, never hiding.
Each day with this disease is a struggle.
Often I face the fact that I will lose.
Crippled, broken, and weak, I hide away
From the world around me seeking solace
From my life with MS and its symptoms.
This misery does NOT love company.
Like a hermit, I choose to keep silent
As the stress of multiple sclerosis
Festers within my heart, wreaking havoc
On my moods, on my thoughts, sinking deeper
Into the crore of my very being.
Symptoms rise and abilities will fall
MS changes without warning, dragging
Me through the memories of what MS
Has taken from me, leaving me empty,
Like an empty balloon, going nowhere.
Walking, running, swimming, and soon driving
Are all things that are now mere memories.
My dream career: teaching in a classroom,
Sharing my love of words with my students,
Are now memories which I am losing.
But I have found some ways through which I can
Regain a small semblance of what I’ve lost.
Boring poems help me release some angst,
And research projects can give me a voice.
Surveys, meetings, discussion boards and more
Provide me with a chance to share and learn.

-Josh Evitt, 2019-

Tuesday, July 30, 2019

Exercises In Futility?

Futile? No!

It is good for me to go to the gym,
This MesS took so much from my life, yet I
Won’t allow myself to stop. I must try
To keep MS at bay, working each limb,
with the goal of again becoming trim.
Symptoms often cause things to go awry,
Draining my vital energy supply,
Leaving my hopes for fitness dark and dim.

Despite how much symptoms revolt, I must
Remain faithful to my goal of losing
Weight and continuing to gain more strength.
At times symptoms might force me to adjust
What exercises I will be choosing.
Helping me to live with MS at length.
-Josh Evitt, 2019-

Tuesday, July 23, 2019

How Am I Doing?

Swimmingly

Less weight, freedom to move, escape from heat
Are all things which I enjoy, at the pool.
Water, so bright, so clear, and so cool
Renews my life with a feeling so sweet,
Refreshing me from my head to my feet.
Along with the comfort, it can be cruel.
Returning to land always drains my ‘fuel’
Leaving me like one who’s suffered defeat.

Despite the heat and the effort it takes,
I must refuse to keep living my life
In seclusion. I will boldly advance
Facing my fears and risk making mistakes.
I know that I will face a lot of strife,
But I must live each day, holding my stance.
-Josh Evitt, 2019-

Wednesday, July 17, 2019

Back And Forth

Spasticity

There are times when my nerves cannot function
In the correct manner. Muscles are ‘told’
To act in a way that is not controlled,
Flexing, contracting, a huge malfunction,
Causing, for me, a major dysfunction:
Spasticity! It strikes, and in its hold,
Bringing me much closer to the threshold
Of what I endure from this malfunction.

Spasticity hits unexpectedly.
Whether getting out of my bed, the van,
Or adjusting my feet in my wheelchair,
I can only observe, dejectedly
As my legs bounce,but I can use my plan
Physical therapy helped me prepare.
-Josh Evitt 2019-

Wednesday, July 10, 2019

Too Hot For You?

Get Me Out of The Kitchen

     Before  I share the next poem, I had to share: Burning, a song from my cousin's band Scattergun. This fairly accurately describes how I think summer sound would if it had a song for me. You'll need Spotify to hear it.


Heat
As the summer rages, the heat will rise
Forcing me to remain within the walls
Of my cooler home and wait for the fall’s
Relief. As the summer terrorizes,
I hide inside, the heat brutalizes,
Symptoms transform into horrendous squalls,
As each symptom, with renewed power, crawls
Through my body, as it terrorizes.

In spite of the summer’s increasing heat,
I must remain active and live my life,
Trying to retain some form of control
In my life. I will not admit defeat.
I will continue to fight through this strife,
Keeping despair from entering my soul.

Tuesday, July 02, 2019

The Stupidity Of

Humidity

When the pressure in the atmosphere soars,
Multiple sclerosis’ symptoms reply,
And their agony starts to multiply.
Feeding my desire to stay indoors.
Even inside, with the AC, sweat pours
From my body, no matter how much I
Remain inside with the AC. “Goodbye,”
I bid to the days of playing outdoors.

I spend my summers hidden inside
My house, nestled safely with the AC.
I am so sick of this stupidity!
Cool air only helps me as I abide 
Summer that now holds more misery.
Such is my life with this humidity.

Monday, June 24, 2019

Something Isn't Correct

Coordination

Some things are meant to go well with others:
Colors of clothes, the tastes of food and wine,
Matching outfits for sisters and brothers.
All are set to be a lovely design.

Raising a glass to my lips as I dine,
Or bringing food to my mouth as I eat,
Or simply tying a knot in some twine
Becomes, to me, an impossible feat.

So many things have been rendered obsolete
With the loss of my coordination,
But I refuse to quit and face defeat.
I leave you with one last contemplation:

From chopsticks to pens, I have lost so much,
But I will press on, even with a crutch.

-Josh Evitt 2019-

Thursday, June 20, 2019

Fatigue/Lassitude

Lassitude

There are times when my energy is drained.
MS fatigue can strike out of nowhere,
Making me feel as if I have been chained
To this disease, injured beyond repair.

Fatigue raises its head, bringing despair
That I never will be free from this MesS.
At times I can barely steer my wheelchair,
Making clear just how far it can progress.

Fatigue also causes mental distress.
The worst part of fatigue impacts my brain,
Hindering the steps of my thought process,
Causing the ones I love to see my pain.

Due to fatigue, and the havoc it brought,
This fight cannot be won, but will be fought.

Tuesday, June 11, 2019

That Was Weak

Weakness And This MesS

Symptoms will continue their progression.
Basic tasks have become complicated,
As this weakness furthers my regression
Leaving me even more irritated.

Loss of strength often leaves me deflated,
With just barely enough ability
For minor tasks, leaving me frustrated
At my state of constant futility.

As weakness lessens my mobility,
I will refuse to sink into despair.
I will accept this disability,
And take my stance in a wheelchair.

I will not stop moving will not submit.
MS will lose this fight I will not quit.
-Josh Evitt 2019-

✱Note: Yes, I know this one stinks. I figured that it would fit the subject.✱

Tuesday, June 04, 2019

Do You Feel Me?

Numbness

A symptom of multiple sclerosis:
A loss of feeling throughout my body.
I have been living with this neurosis
And a weakened sense of what touches me.

On most days I will find myself nearly
Dropping anything that I try to hold.
I miss tactile feeling so dearly.
But 'meds' and OT help keep it controlled.

It won’t relent, even as I grow old
Scars, bruises also bring testimony
To how powerfully numbness can hold
Me in its icy grip of larceny.

Despite this theft, I will still live my life.
I will be there for my children and wife.

Friday, May 31, 2019

MRIs, Music, and Me

In keeping with my plan, here is my next poem.
Be warned, it is horrible.

The time has come for my next MRI.
The Shepherd Center is my objective,
And I arrive with hopes reaching the sky.
No new lesions! Rituxan’s effective!

I must keep still for an hour, or more
While the machine examines my brain.
The droning lures me to sleep, and I snore,
Listening to the numbing beats galore.

Soon it will be the time for my next scan.
To sit for an hour in the device
And then discuss with my doctor the plan
Of how to treat MS, with his advice.

So, then in six months time I will return
For my next scan to see what I can learn.

Tuesday, May 21, 2019

I'll Drink To That

Bottoms Up
or
Down the Hatch
or 
Or hundreds of other ways to say, "Lets drink!"

To sit calmly and enjoy a good draft
Of beer sitting at home or at the bar,
While I savor the brew-master's craft. 
I think of the beers in my repertoire

Thanks to this MesS I more easily feel
Alcohol’s buzz as it enters my brain.
This allows me to handle the ordeal
By helping me see the fun through the pain.

Alcohol might be proof that God loves us.
The flavors and potency also show
Alcohol as a gift most generous,
And happily I let spirits flow.


There’s a hidden benefit in this MesS:
To feel a good buzz will cost me much less.

Wednesday, May 15, 2019

Respite, Holiday, Recreation, Intermission, Sabbatical

Take A Break


Vacations now require extensive
Plans. So that the dependability
Of my wheelchair will grant comprehensive
Preservation of my mobility

Now the time has come for a camping trip,
Always taken in the late Fall season.
Summer’s unbearable heat, I must skip.
Dodging Spring’s rain is the other reason.

I now can enjoy camping in a tent,
But there are still some dangers to avoid.
I don’t want my energy to be spent
On trifles and my endurance destroyed.

Yet, in spite of the work that is needed,
I enjoy vacations unimpeded.

Tuesday, May 07, 2019

Summer's Hell Begins With:

😱💀Sonnets💀😱

     I know that I should have employed this genre in April. But, there are two very different and compelling reasons as to why I did not. First, as Eliot said, "April is the cruelest month." For me, April's constantly altering temperatures and humidity increase the severity of my symptoms with this MesS. Secondly, and much more importantly, the realization of this did not hit me until the middle of April, and, as I had already started my month of Haiku, I could not bring myself to change my path. Therefore, what follows is my first attempt at a month of English/Shakespearean sonnets.


Summer

As the days grow warmer, symptoms increase
In their frequency and severity.
I remain in my house, seeking surcease,
Guarding my cool air with ferocity.

Summer nights can be slightly bearable,
Providing shade from the malicious sun,
But humidity remains terrible,
Summer’s seasonal hell has now begun.

Air conditioning will also relieve
And abate the constantly climbing heat.
With cooler air granting me a reprieve.
I will not be subdued, face defeat!

Yet, despite the heat, I will abide
To watch my children as they play outside.
-Josh Evitt 2019

Monday, April 29, 2019

Are you in the mood?

Swing Away!

Moods are funny things.
They can change so suddenly
And with no warning.

Not being haughty,
I just tend to be cautious,
Keeping my distance.

Image result for Huh?
MS can cause my
Reactions to you to change:
The wrong emotions.
A day might start well,
But medication can help
Keep stability.

Image result for solitude
People often say,
"Misery loves company."
For me: solitude. 

Tuesday, April 23, 2019

Rub A Dub Dub, Never Getting In The Tub

Taking A Seat
(in the shower)

Taking no more baths-
Water must never be hot-
Using shower chairs.

Scrubbing with one hand
Used for balance when eyes close:
Proprioception

Simplicity helps:
Soap, shampoo, conditioner,
All in one bottle.

It's my greatest fear:
If I should fall while bathing-
Naked and need help.

At the shower's end
Taking longer to exit
Than the shower took.

Wednesday, April 17, 2019

Baby Steps On A Downhill Slide

Walking On NOTHING

Small children will learn,
After falling so many times,
The joy of walking.

Some need help to walk;
A sturdy cane can suffice
A return to feet.

Soon, steps will falter;
The cane is now obsolete.
The walker arrives.

The walker needs help.
A scooter for the outside;
The walker stays home.

The wheelchair arrives.
And it will replace them both
With mobility.

Tuesday, April 02, 2019

April Can Be So Cruel

Memory Haiku

     Rather than just one poem for this rather diminutive style, I am attempting a weekly collection of haiku focused on a single aspect of how I deal with this MesS.

MS’ memories
Numbers, names, and directions
Fading and failing

Seeing an old friend
I have known for many years
Who are you, again?

Important events
And the times when they begin
I don’t remember

Dead leaves in the wind,
Floating away aimlessly
Like my memory

A funny story,
The beauty of a moment
Are gone forever.

Memories will fade.
But I will not lose this fight!
My cell phone helps me.

Monday, April 01, 2019

An End of the Mockery

Canto IV: Final Thoughts

Soon the infusion will come to an end,
And there are signs that Rituxan can mend
The ravages of MS upon his
Mind and body. For the result now is:
5 No new lesions and no growth on older.
Ones, allowing him to be much bolder.
Also, his mobility has improved,
Despite needing a wheelchair to be moved.
His arms, required to take up the slack
10 Left by his legs, get some of his life back
To the days that he foldy remembers:
Social life with friends and family members.
Now, as the infusion comes to an end,
He prepares for the time that he must spend
15 In Atlanta’s evening rush hour,
Riding on the waning steroids’ power.
He will be able to enjoy the ride,
Keeping ahead of the oncoming tide
That he can see rising behind the van,
20 And the evening rush has just began
To clog the streets and highways behind him
Creating a scene so dark and so grim,
He is happy to have avoided it.
.So he returns home to rest for a bit.
25 Anticipating his next infusion,
He will not submit to the illusion
Of an end to this infernal disease.
But, rituxan now helps him rest at ease.

Tuesday, March 19, 2019

The Mockery Continues

Canto III: Past medicines reviewed

He knew Tysabri was temporary;
Another med’s search became primary.
Fearing that the dreaded PML would rise,
Leaving Tysabri was not a surprise.
5 He spent that year searching for something to
Replace it. He then found one to rescue
Him: Tecfidera, once called BG-12.
Deep into this medicine did he delve.
He found anecdotes and many reports
10 Lauding it. Switching to it, his doctor also supports.
Tecfidera does its job well for a year,
Then the threat of PML did appear,
And another medicine was needed
So the pill Aubagio succeeded.
15 And it appeared appeared to be working.
Well.Yet another problem was lurking
Under the surface, waiting for its chance
To strike, allowing MS to advance.
Soon the cane became an obsolete tool,
20 And switched to a walker. Like an old fool
His steps were few and his falls severe.
All too quickly it was made very clear
That he could not drive, and he could not walk.
He met with his MS doctor to talk
25 About another medicine that could
Better slow this regression, doing good
Work and weakening its grip on is life. 
He hopes Rituxan will settle the strife.
Now, he waits six hours for it to cease
30 Infusing through his veins, the final piece.
-Josh Evitt 2019

Tuesday, March 12, 2019

Canto II: More Mockery

Once all of the pre meds have run their course,
It is time to begin this visit's true source:
Rituxan. Now, he waits for five hours
With his phone, he fights as boredom devours
5 The slowly dwindling hours of the day
With thoughts of the meds he’s met on the way.
Betaseron, with its odd injection
Schedule. It offers hope of correction.
The symptoms abate, and the falls decrease.
10 Happily, he had a four year surcease
Of symptoms while betaseron worked.
But, unbeknownst to him, a relapse lurked
Beneath the surface of his failing med
Taking him off of his feet, bound to bed
15 Betaseron’s time is now at an end.
It’s now copaxone’s turn to try and mend
This relapse with a daily injection,
And take MS to a new direction.
For three more years copaxone fight MS.
20 Soon, a greater relapse causes distress.
Losing a teaching job, driving, and sight
Copaxone’s failure left him in a blight
Of spirit, body, and his failing brain.
He knew then that he’d never teach again.
25 But then Tysabri arrived, and with it
Appeared an unexpected benefit:
He was able to walk without his cane!
Then he became a teacher once again.
It seemed that tysabri had halted the
30 Progression of MS through his body.
His life felt restored, and hope did return!
But yet there was still one lesson learn.
But for now, he exults in Tysabri,
Unaware of his future misery.
35 Fondly, he remembers the joy it brought,
In spite of it being with danger fraught.
Then, he remembers tecfidera’s rise
To save the day and its evil disguise.
Tecfidera’s relief went not too well,
40 Awakening the threat of PML.

Tuesday, March 05, 2019

March: A Mock Epic

A Mock of a Mock Epic
     For the month of March I was inspired by: the length of my rituxan infusions, six hours; the distance to get my infusions, 90 miles one way; and the difficulty of getting there, Atlanta's traffic, to attempt a mock epic that tells the story of Rituxan.

So, of the trials and deeds of Ritiuxan, sing in me, oh muse

Canto I: The Journey Begins

Awake before the illustrious sun
Sends shiny tendrils, waking everyone,
He sits, guiding his chair into the van,
His cell phone charged and displaying a plan.
He climbs from his chair to the driver’s seat. 5
Wheelchair secure, he drives onto the street.
In Toccoa, traffic is quiet, calm.
But, he knows, that like a ticking time bomb
Rush hour traffic is ready to explode
Spreading a mess of cars over the road.  10
Comfortably, he drives through Gainesville’s sleeping
Rush hour before the traffic starts creeping
Onto the highway. Now, he drives warily, for he knows
That as the morn progresses, traffic grows
From the slight flow of vehicles wanting  15
To beat the oncoming rush, so daunting.
The sun is awake, and his journey’s end
Looms off the highway, just around the bend
Off of Eighty-five’s exit: eighty-six.
Help with his MS is what it predicts.  20
Finally! The Shepherd Center appears,
The home of his relief for many years.
Cheerfully he steers the van down Peachtree
Road, and then greeted by security.
Arriving early allows him to park  25
Closer, so that he can disembark
From his van and easily he can roll
Into the Shepherd Center, a nice stroll.
His chair parked and now he waits for the call
That will summon him down through the long hall  30
 And place him in the infusion center,
Where all of the ‘pre-meds’ wait to enter
His veins. The pre-med injections are done.
He thinks about how this trip had begun.

Tuesday, February 26, 2019

How I've Evolved

Evolution or Adaptation

Thanks to this MesS, I’ve learned new ways for doing old things.
From bathing to walking, from driving to writing, so much has changed.
Sometimes I feel as free as a bird-with clipped wings.

Because of the adaptations I’ve made, a voice in my head sings:
“Trying to adapt rather than just sitting seems quite deranged.”
Thanks to this MesS, I’ve learned new ways for doing old things.

One adaptation that multiple sclerosis brings:
Whether short or long, the details of all trips must be pre-arranged
Sometimes I feel as free as a bird-with clipped wings.

At times the reality of this MesS is so clear that it stings
To look back at that I have lost. How much I’ve exchanged.
Thanks to this MesS, I’ve learned new ways for doing old things.

Yet there are also times when, in my favor, the pendulum swings,
And I realize that rather than gone, some skills are just interchanged.
Making me feel as free as a bird-with clipped wings.

From all of these adaptations, one important thought springs:
My resolve will need to remain unchanged.
Despite this MesS, I’ve learned new ways for doing old things.
Someday I hope to feel as free as a bird-without clipped wings.





Wednesday, February 20, 2019

Full Time PT

Physical Therapy
This MesS has taken so much from me.
I now must complete old tasks in new ways.
Hope for a little of what I have lost lies in physical therapy.

At the beginning, a difficult path is my only guarantee,
And, despite how much I try, my body still disobeys.
This MesS has taken so much from me.

Despite so much failure, I am starting to see
That this commitment is for life,not just a few days.
Hope for a little of what I have lost lies in physical therapy.

Falls used to require mere seconds for recovery. 
But, now what took minutes takes hours in a daze.
This MesS has taken so much from me.

I’ve gained some new skills, providing a new discovery:
Falling and recovery now have entered a new phase!
Hope for a little of what I have lost lies in physical therapy.

It hasn’t been easy, not a pleasant journey,
But learning has helped fight this malaise.
This MesS has taken so much from me.
Hope for a little of what I have lost lies in physical therapy.

-Josh Evitt 2019

Tuesday, February 12, 2019

Giving A Hand

As MS is progressing, I have had to modify some of the simpler things that I used to do: Writing, a switch from right to left; folding, using just one hand; and many more as well.

A Helping 'Hand'
MS has given me a sudden and unfortunate turn.
I knew to expect it, just not yet.
I will not quit; what the right side did, now the left must learn.
Without a pencil or pen, the keyboard allows me to return
To writing again, but still I cannot forget:
MS has given me a sudden and unfortunate turn.
Along with my weakened hands comes another concern:
Falling and recovery causing so much regret.
I will not quit; what the right side did, now the left must learn.
All these difficulties are leading me toward a life quite taciturn.
I cannot deny or ignore how my path is set.
MS has given me a sudden and unfortunate turn.
Walking is a thing for which I still yearn,
But the weakness in my legs remains a threat.
I will not quit; what the right side did, now the left must learn.
I still, one day, hope that my ability to write will return.
For now, I must adopt a new mindset.
MS has given me a sudden and unfortunate turn.
My hope is that what the right side did, soon the left will learn.

-Josh Evitt 2019

Tuesday, February 05, 2019

Wheels or Feet?

In 2018 I began to use a wheelchair
It's been interesting.

My New 'Feet'

While I am relatively new to being in a wheelchair, it has become a thing to which I've adapted rather easily.
The days of using my feet are now done,
Now I am confined to my chair.
I still can move, and MS hasn’t won.
My life in this chair has just begun;
Socks and shoes are now things about which I no longer care.
The days of using my feet are now done.
For a while I wanted see no one!
But, in my new chair, I can now go anywhere.
I still can move, and MS hasn’t won.
In mere moments, it seemed I was undone,
I’d be confined to a powered wheelchair.
The days of using my feet are now done.
Wheels replace the feet, and, yet there’s still fun;
Stubbing my toes is no more an affair.
I still can move, and MS hasn’t won.
So, a new chapter of my life with MS has begun,
And for a while, I had to fend off despair.
Accepting that the days of using my feet are now done,
I still can move; MS hasn’t won!
-Josh Evitt (2019)

Tuesday, January 29, 2019

The Left Hand of Driving

Driving Without Feet

My weakened legs led to a disastrous mistake.
A vacation from driving I had to take.
Searching and looking, I did finally see
A way to restore my mobility:
Now, one hand steers, the other for gas and brake.

Tuesday, January 22, 2019

What Did You Say? How Do I sound?

Sometimes a word enters my mind,
But a path to my mouth it won’t find.
So, instead of, “Hello,” “Goodbye,” or, “Come here,”
A garbled mess is all that you’ll hear.
Aphasia is unkind.
-Josh Evitt (2019)

Tuesday, January 15, 2019

A Huge Hug

In keeping with my goal for the year, 
here is the next addition.
Once an affectionate squeeze,
It's now maligned by this disease.
The ribs are tight and breathing, a fight.
At times, I can barely manage a wheeze.
-Josh Evitt 2019

Tuesday, January 08, 2019

Annoying Signs

Lhermitte's Sign/Phenomenon

Lhermitte's sign was one of the first symptoms that confirmed MS.

Bending my neck to look at my feet
Always brings a sensation not quite so sweet.
Electricity runs from my neck to my toes,
Tingling my my spine as it goes.
Oh, the 'joys' of Lhermitte!
-Josh Evitt 2019

Tuesday, January 01, 2019

New Year, New Goal, New Plan

My Plan

     I am not going to make any illustriously complicated plans. This past year has taught me that I STILL need to set reasonable goals. So, here's my plan: one poem per week. It might be funny, sad, serious, or boring. As I've stated before, "After examining the works of many a'master, I am a tasteless poetaster." 
Here is January's first limerick.

My Handicapped Van
I drive a handicapped automobile,
For I love how it makes me feel
To drive here and there without any a care,
But finding a parking spot is my, “Achilles’ Heel.”
-Josh Evitt 2019